I have been writing a few angry posts as of late, and I’m sorry about that…
But I am beyond livid. My son, just like hundreds of thousands of other children that have any disabilities, is getting left behind.
In previous posts I have discussed the “free” health care that is not working for my son including not receiving therapies that he desperately needs. Now we have submitted forms to get some coverage(75%) for an AFO to assist my son in walking and hopefully correct some (if not, all) of the muscle weakness in his left side…
Now, I had these forms completed and sent in over 5 months ago, just waiting on a diagnosis letter. When that finally came in, I sent it immediately, weeks later I was called and asked to send things that I had already sent in. Two days after that I was asked to provide proper identification for my son, that I had previously sent with the original application. Now, I thought, we wait 6-8 weeks to see if he’s going to get this funding.
Going with my gut, I called this morning to find out the status, and I was informed that it would take a minimum of 90 days (90 business days from the time I re-sent the forms is OCTOBER 6). So my child has to wait another 4 months to see if he even qualifies to get help for his Cerebral Palsy, plus drug benefits to cover his $200+ anti- seizure medication costs. Not to mention the fact that he won’t be wait listed for IBI because he “doesn’t seem to need it right now” as he grows increasingly frustrated with his inability to communicate.
Now, I’m not a professional, I’m still pretty new to this… But how is it that a 3 year old is being shuffled under the radar? Anyone want to take a guess?? It MIGHT have something to do with the colossal CUTS to health care, or cuts to IBI, cuts to early interventions services(which lets face it, weren’t that “early”). Or it could be that MY son is one of AT LEAST 27,540 children 0-4 getting shoved through the system as quickly as possible so that they don’t further “burden” the system!
I wonder, how would you fair in OUR position? Kathleen Wynne? Want to try it out for a month? Want to live on MY budget? Try and fight tooth and nail to get someone to pay attention to OUR kids? How about you try to be on the front lines, be an advocate as well as a parent/ spouse. How about you go through the stages of booking a brain surgery, while battling with mental health issues?
Or take any of my fellow MOMstars life and live them for a month? Because you clearly have no knowledge of what these cuts are doing to Ontario families.
I am F*****G PISSED!
And if you can’t understand why, then YOU are part of the problem. Stop watching, get off your perfectly polished behind and start FIGHTING for OUR kids that have just as much of a right to a successful future as every other kid. STOP PUSHING PARENTS OF CHILDREN WITH DISABILITIES AROUND!!!!!
One Day At A Time, I’ll fight for you Nicholas.